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Looming Crisis in Chronic Care
Read Selected Facts and Figures on community long term care in the Capital Area.

Advocating for Care in the Capital Area of New York State

General Interest Articles

The Looming Crisis in Chronic Care:
Selected Background Abstracts

These selected abstracts provide brief background information on national perspectives of the looming crisis in chronic care.

Increasing Costs of Chronic Care May Bring on Funding Crisis in Health System- - Bill Ingram in the Medical Tribune, 1996.

Chronic care for often co-existing disease states is an emerging monster, eclipsing the cost and scope of specific, acute-disease care, according to health-care policy experts.

"We are moving from a predominance of short-term-care-oriented conditions to a predominance of conditions that require ongoing, multidimensional, high-cost care," said Richard Bringewatt, president of the National Chronic Care Consortium.

Diane Rowland, vice president of the Kaiser Family Foundation, observed, "I think we're going to face a huge crisis in trying to stick with the status quo to finance chronic care in the future. We need to look at the structure of benefits, and figure out how to shift funds between chronic and acute care."

Chronic Diseases: The Nation's Leading Causes of Death -- Drug Benefit Trends, 1998.

Chronic diseases are the nation's leading killers, responsible for more than 70% of all deaths. Many of the 1.7 million deaths among Americans from chronic diseases each year are in large part preventable by changes in lifestyle and timely screening.

The medical care costs for persons with chronic diseases total more than $400 billion annually, or more than 60% of total medical care expenditures.

Much of the chronic disease burden is preventable. Effective prevention measures exist today to curtail the illnesses, disabilities, and unnecessary or early deaths caused by these diseases. In addition to changes in lifestyle, tools are at hand to detect certain chronic diseases in their early stages, when treatment is most effective.

Social Security Disability Trends -- Social Security Monthly Benefit Database, and 1998 Annual Statistical Supplement.

Social Security disabled worker, disabled widow(er) and disabled child beneficiaries have increased from 4.8 million in 1994 to 5.6 million in 1998, a growth of 17 percent over this 4-year period.

The number of Supplemental Security Income (SSI) recipients remained stable over this period but numbered an additional 6.6-to-6.7 million people with disabilities from 1996 to 1998.

In New York State, as of December 1997, there were 452,343 disabled SSI recipients under 65 years of age and 312,617 Social Security disabled workers beneficiaries under 65 year old.

Diagnostic groups reported for New York State's disabled workers show that 24.9 percent had mental disorders (other than retardation), 24.2 percent had musculoskeletal system diseases, 12.6 percent had circulatory system diseases, and 9.3 percent had nervous system and sense organs diseases. Each of three other diagnostic groups - - mental retardation, injuries, and endocrine, nutritional and metabolic - - accounted for an additional 5 percent of the disabled worker beneficiaries.

Older and Younger People with Disabilities -- Administration on Aging Fact Sheet, 1998

As the population ages, more Americans will have illnesses and chronic conditions that limit their ability to carry out ordinary tasks - - bathing, rising from a chair, opening a window, and walking to the grocery store. With a current life expectancy of 75 years, newborns, today, can expect to experience an average of 13 years with an activity limitation. Because the 85 plus group is the fastest growing segment of the population, many Americans may live with activity limitations for 20 years or more.

According to Chronic Care in America, "In 1995, one in six Americans - - 41 million people - - had a chronic condition that inhibited their lives to some degree." The report says, "At least 9 million people with disabilities need help either with personal care or home management (40 percent are under age 65)."

According to the report, in 1994, nearly 40 percent of the elderly not living in institutions - - 12 million seniors - - were limited by chronic conditions. Of these, 3 million (about 10 percent of all elderly) were unable to perform such activities as bathing, shopping, dressing, or eating.

The direct costs of medical services for persons with chronic conditions, according to the report, amounted to $425 billion in 1990, and 65 percent of those costs were for hospital care and physician services (39 percent to hospitals and 25 percent to physicians).

The Looming Crisis: Facts-at-a-Glance -- American Health Care Association, 1998.

From 1960 to 1994, the "oldest old" population (persons aged 85 and over) increased by 274 percent, compared with a 100 percent increase for the 65 and over, and 45 percent for the total population.

From 1994 to 2020, America's 85 and older population is projected to double to 7 million.

In 1994, 7.3 million Americans needed long term care services. By 2000, the number will rise to 9 million.

The elderly and their families represent the largest single group of purchasers of long term care, spending almost $36 billion out of pocket, or nearly 40 percent of the total $91 billion expenditures for long-term care in 1995.

Over 70 percent of single individuals and 50 percent of couples with one partner in a nursing home are impoverished within a year.

The Looming Crisis: Long Term Care and Baby Boomers -- American Health Care Association, 1998.

The baby boom generation - - those born between 1946 and 1964 - - is uniquely affected by the growing dilemma of long term health care.

The retirement of the baby boom generation will coincide with tremendous advances in medical science and, with that, longer lives. And though the baby boomers may retire with the largest nest eggs in history, they will be forced to apply much of their hard-earned savings toward the long term care these medical advances warrant.

"The current system of financing and delivering long term care for the baby boomer generation is badly broken," according to a report by the Urban Institute.

The Looming Crisis: Long Term Care Financing Reform -- Paul R. Willging, Executive Vice President, The American Health Care Association, 1998.

The future is clear. Medicaid cannot and will not be able to continue as our nation's primary source of financing long term care. This federal-state welfare system, which pays the nursing home bills for two out of three Americans, is beyond repair. Comprehensive long term care financing reform is the only cure.

Today, most older Americans simply cannot afford the $41,000 annual average cost of nursing home care or the average $89 per-visit fee charged by a Registered Nurse for home care. Most Americans do not believe they will ever need long term care. Consequently, few take steps to plan for that possibility, believing Medicare will provide for their needs. Medicare, of course, will not. It only provides limited long term care, so government help for most Americans comes only when they exhaust their personal savings and are forced onto a welfare program.

Our [the American Health Care Association's] plan is based on four key principles which state that, as a nation, we must:

  1. Transform long term care from a welfare program to a health care program;
  2. Coordinate long term care private resources with Medicare and Social Security;
  3. Encourage personal and family responsibility for long term care; and,
  4. Maximize quality and control costs through market competition and consumer choice.

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